Now in the PICU

Just wanted to update - last night when I was still here, Peanut was kind of crashing, at least respiratory wise, her heart rate is in the 140-150 range, and she's now on her Bipap (sleep apnea) machine during the day as well. They've done 2 chest x-rays, an echo cardiogram, EKG, multiple meds, all trying to get her chest cleared up.

So, last night/early this morning, after she was in such respiratory distress, they brought her over to PICU. She's currently getting terbutaline, and not sure what else. Daddy had the night shift, so he was here for all of that. But he's at home now, getting some sleep.

Now, the one good thing with all of this is that there are more doctors who are also of the belief that there's more going on here then just calories. And the one doctor working here in PICU is looking to go into endocrinology, so she's extremely interested in Peanut! Which as I said to her, that's great! She even is getting us the name of a new ped. endo. that just joined another hospital. She's supposed to be really good.

I will say that we get the best care in PICU! I love being here mostly cuz of the high attention she receives. But they also seem to just want to know more.

As of now she's gotten magnesium and is on a drip with terbutaline. I seem to always say that I hope this time she's going to get her some help and answers. I'm encouraged by this dr. that is so interested in her. She's sleeping again right now. She did get up though, went to the bathroom, got dressed, cleaned up a bit, just a little bit of moving around. But being off her machine for a few minutes and her O2 sats were in the 60's!

This is even worse than the last time cuz her heart rate is just so high. And they're not letting her eat cuz they need her lungs to be better. Poor kid just wants something! And not even water!!

I'll update more as we go along!